Sharing my life and love of cross stitch. Thoughts about this and that.

Wednesday, January 25, 2017

Rare Disease Day 2017

4 comments:

Kate said...

Good luck with your health issues, Linda.

LindaMc said...

Thank you, Kate!

Faith... said...

Sorry to hear about your diagnosis. I saw your Rare Disease post and got excited! I also suffer from a Rare Disease (XLH) X-Linked Hypophosphatemic Rickets which I was born with. Hope you are receiving great treatment and they can help you with your diagnosis.

LindaMc said...


Thank you for your kind comments, Faith. MDS is caused by genomic abnormalities and is a progressive disease. A successful stem cell transplant is the only cure. I am being treated by a local hematologist/oncologist and a MDS specialist at UT Southwestern. I was reading about XLH. I admit I thought rickets was strictly diet related and learned it also is a genomic issue. I trust you will continue to do well with treatment.